The Looking Glass of Autism

Alice Through the Looking Glass, like Alice in Wonderland always felt like it was born from a feverish nightmare.  If not that then from Lewis Carroll' migraines or perhaps epilepsy as he was rumored to have suffered from. I  wanted to understand how it was such a classic so I went where all people go when they have questions - Wikipedia - the most relied upon source for unreliable material! When I understood it's many references to literature and chess I began to understand a little more its appeal.  The storyline is  the looking glass or mirror is an entryway to another world that is a reflection of Alice's own. As with all reflections, things are reversed and never quite what it seems.  Try writing a word that can be read properly using a mirror and you will know what I mean.  Your mind bridges two worlds - your end goal to be seen in the looking glass while your hand moving in opposition to what feels natural.  Only in going back and forth between the two images are you able to achieve your goal.  In so many ways  I am a bridge between the two worlds for my son of what is neurotypical and autism, I am that swinging pendulum.

My beautiful son Elias exists in the looking glass world.  The deeper he in in that world, the more withdrawn he is.   Things are not quite what they seem, lights and sounds frighten him and you're never sure which ones they'll be.   Certain textures use to create a gagging response even when only touched by his hands.  Things that seem comforting to him seem too intense to us.  His world is reversed.  Most of us exist on the other side and to us his world seems strange. 

I find myself navigating between these two worlds, trying to help others reach him and understand him.    The moments he is spinning happily, going up and down stairs or playing with doors makes these moment obvious.  The explanations are unending and they now come automatically as we try to get through the day. It is a busy labor of both heart and mind.  

Occasionally I feel that ever so slight pause at the peak of the pendulum and time seems to pause on one side of the looking glass or the other, these are the times I tend to feel the greatest pain as a parent.  I felt it a great deal on our recent vacation.   While at a museum Kent was off  playing with the other children  while I had found some glass doors for a Eli to amuse himself.  Pulling them open and stepping back to watch them gradually swing into place, he grins in shear atticipation and with a burst of giggling at the moment of closure.  His laugh as always evokes my answering smile at his deep pleasure.

It was then I chose to look through that window. A passing class of children gazed with undisguised curiosity.  Beyond them I saw my family playing happily and they felt like a world away.  I wasn't there sharing in the moment, I wondered if they'd become so use to their parents being separate in all our outside activities that they didn't miss me.   Did they miss Eli, did they wish he could be there to join in their games?   I. missed them, I missed feeling we were altogether a family sharing in our experiences of the world. Instead I felt like I was trapped on the other side, looking through touched by the heart but untouched in body wondering when we might experiencing and sharing on a connected whole family.   I mourned his diagnosis all over again.

Then there are other times when we all seem to be in front of the looking glass.  Even Eli is prepared to be there, reaching through to touch his siblings on the other side.  These are the times I feel some of my greatest joys. When we exchange raspberries on each other's bellies, when we 'blub bulb' with our fingers on our lips and end with a resounding "Tada!" That would evoke a round of laughter. The best ones are where he reaches out in his own like recently on a hike when Eli took his older sister's hand.  Her surprise and delight had stopped her in her tracks to loudly declare ," Look mama, Eli loves me!!"  He responded with his typical side head tilt into her arm as if to say, "'Of course I do!"

So if you ever wonder why it is I can swing from joy to pain in a single moment it is because of these two worlds I bridge.  The funny thing that I've come to understand is that we all have our own little looking glass worlds.  They are not as obvious as Eli's and not always as isolating but the connections that are made at the border point are the ones that help us bear through the loneliness.  More than that we are not so different from each other but our realities are, the struggle is to not let our realities define us or others.

As cute as he is now, one day he will be a man and I will not be always there to bridge those worlds.  Will he come to the looking glass and find anyone there?  Will he reach through and find that connection that gives his life meaning and worth?  Will it be only a few or will we have built him a community? 

Will you come to the mirror?  Will you cross that bridge for him.  It becomes easier each time you go and as you understand him you will see him for the beautiful individual he is.  I love him with all my heart and the more you take this journey with me, the more my mother heart can rest assured in the future - a future of greater understanding, compassion and grace.  This is the prayer of every special needs parent.

Judo, Chess and More!

The days and all our activities fly by so quickly I'm often afraid they'll be forgotten if I don't record it here for my kiddos.  Bug had a big achievement the day we left for SLC.  She competed in her first judo tournament and while she lost the match, she was actually given the most points and was awarded a medal.(unfortunately it was lost in transit and she never got to see it)

It was an anxious day for her but we knew she'd do wonderfully once she got there.  We took care to keep things relaxed and to get there in plenty of time so she could warm up with her friends and they could get her familiar with the routine.

All the flip flops left a the edge of the mat had me chuckling.  It looked like massive party at an Asian's home!

Everyone bowing in.

Our dojo is run by a man in his 70's named Larry Gaines, otherwise called 'Mean Sensi' by the kids.  He's a grandfatherly figure who loves to treat them to gifts from his trips and candy during holidays.  Unfortunately he had a hunting trip so another Sensei stepped in to coach Keila.  He could tell she was extremely nervous but once she was on the mat he said she did great, especially given her opponent had more experience and that this was her first time.

Admittedly all such activities need a bribe in her case.  She loves to 'collect' living things (that's how Kent puts it!) and was eyeing a pink-toed tarantuala initially.  I was a little uncomfortable with the choice (can you blame me?!)  We readily consented when she changed her mind to a beta fish which she has named Coral Golden Montierth.  The things we do for children!  Not long after she earned her yellow belt.

Otherwise our days a spent between therapies and homeschooling.  On some days it feels like everyone is getting therapy all at once.  Bug was helping Bubby feel secure in this different swing by distracting him with his favorite game.  Of course everyone else needed in on the action and before I knew it they were either swinging or spinning.  It's makes me a little sick to watch Bud but with everything I've learned about child development I now know these experiences help them develop awareness of their body.

I love some of the educational toys they have there.  If I had all the space in the world and the money for it ....

Isaac has been busy with an online chess class.  He absolutely loves the tournaments and it's been a humbling experience since he's up against some pretty amazing players.  In general he's lost most of his games but he enjoys the mental exercise and learns a great deal from his opponents.  The tournament he played in today he tied for third place and qualifies for the more advance class.   We have him do extra chores around the house to pay for these tournaments and his eagerness to do the task is a testament to his love for the game. 

His engineering brain can't help but build ALL THE TIME!

For Halloween this year Bug requested to be a blue jay. She helped as much as possible and did all the glitter work on her mask which she was so proud of. Thankfully everyone else had fairly easy costume requests.  We tried a more elaborate pumpkin this year and Bud ended up doing most of the work. The perfectionist in him was bothered that a piece fell out and vows next year to do a better job.

The homeschool coop is still continuing.  Admittedly there are days when I'm tired and a houseful of people seems like more than I care to take on, but at the end of it I'm so happy to see my kiddos having fun and learning so much.  Best of all I've seen some real growth in Bubby as he has slowly joined in some of the activities.

One of our days we attend AZ on the Rocks for their Homeschool day.  Thankfully we meet up with some friends from church and they literally showed us the ropes.

For all his fear of heights Bud did great!  Bug was in her element, and daring to do everything.  I managed to get in one climb up but the two littlest were too shy.  Perhaps next month!

Our days alternate between therapies, coop and just doing the basics of reading, math and spelling.  On and off we get in a little something extra like Dia de los Muertos.  As we made the papel picados we got a side lesson on symmetry (bilateral and radial)  They enjoyed learning about another culture and it gave us time to remember some of our loved ones who have passed.

It's a good life.  Insanely busy, but wonderfully so.  Glad to have these munchkins to make these memories with and to celebrate all their achievements.