I swear I lost 3 lbs tonight when I chopped my hair. It's the shortest I've ever had it and I LOVE it!!!! Here's the before shot
Farewell my long thick locks! I'm mailing it to Locks of Love...
Here is the new me! I was aiming for a post-long lock lop Rapunzel had in 'Tangled'. Big shout out for Jodi Crosby, who did wonders with the cut. I will be so lovin' this in the AZ summer heat!
This is my new get up and go morning look. I think I've finally got some style!
So this new look and a bowl of Blue Bell ice cream made me a very happy woman. It's the small and simple things!
Wednesday, May 16, 2012
Tuesday, May 15, 2012
Father and Son Campout
It's the annual Father and Son Campout. Last year I left it to Kent to blog about and it didn't happen. The man is much too busy to remember the day to day schedule, let alone past events. This time I enlisted Isaac to help me record it. So if it's odd grammatically, bear in mind I'm writing it with his voice. It's cute in it's own way. We drove out on a sandy road that was too long and bumpy. So that's why my legs hurted. Me and Baba talked and ate treats And then we got there and I played and roasted marshmellows. It's called smores! I played with Joshua in the morning and Daniel at night. We played swords with sticks. It was a forest. And I hope there are no bears there because bears live in the forest. So there was a bunch of trees and a river. The old river had no water, but there was a pond. At the morning I saw one duck on the pond. When we were driving we saw a hawk and even a vulture. We saw a dead snake, I just forgot. It was fun. He and Caden spent a good deal of time together and offered lots of goofy shots for Kent. I'm glad that Isaac has such a good fun friend. I love this picture of all these little boys in their element, wandering, digging, gathering sticks. It's so primative! ;0) This was just before leaving. Kent says he was exhausted and a little sad to leave. Till next year...
Sunday, May 13, 2012
First Time All Over Again
This is the longest I have ever gone without blogging. I'd feel withdrawal pains if I weren't so sleep deprived! I knew three would be harder, but there's something about being in the middle of it all when reality hits you like a brick wall and suddenly you appreciate how simple life was before! ;0) Regardless, this blog is our family journal, something that the kids love to look at and something I hope they will treasure and share with their own families later. Realistically I know I won't be posting 4-6 times a month anymore, but I need to sneak in a post once a month so that I'll have something to read and smile about when everyone is grown and gone.
Elias is as snuggle-able a package as anything can be. Somehow he's taken our entire hearts without lifting a finger. Keila and Isaac are in raptures when he looks at them and I worry more that he'll be smothered with love. Hopefully he'll grow to look on these annoyingly intense expressions of love with pleasure. Despite being only 5 and half weeks, he too has had his own accomplishments. We went to the doctor a week ago and discovered he was only 6 ounces more than his birth weight. Despite the jaundice being gone, his sleepiness was increasing and feeding him was taking an hour and a half to complete. Since I was breastfeeding once side and bottle feeding the other, I had no real idea of how much he was getting. (This is where I'd like to ask the Lord if he could just make my breast see through with little marker lines for the ounces of milk produced .... anyone else feel the same way?!) It turns out that the fatigue was not just due to low muscle tone, but that his sugar levels were dropping which made him more tired, hence he would not feed well and the cycle spiraled downward. I was rather distressed and overwhelmed with how to break the pattern let alone function with the other two children. The doctor suggested that I try pumping entirely at least every other feeding and to get in 3 ounces each time. Unfortunately when we did this, Elias who has a little reflux, seem to aspirate more frequently. I would nurse him and lay awake listening to him gag and choke on whatever came up or I'd 'sleep' on the couch upright to hold him through it. Obviously he couldn't handle more than 2 ounces of anything.
Next we tried to fortify his milk by adding just a small amount of formula to my pumped breastmilk. I also asked for some expert advice from 2 friends who have babies wiht Down Syndrome. We moved to 3 hour feeds and Kent took care of the other kiddos for the entire weekend. I moved from one sleep deprived feed to another and crashed in bed each moment I got, by Sunday night I was getting worried about how long it would take to break this cycle. Thankfully it was that very evening we Elias began feeding quicker and better. I did a dance of joy (in my dreams!) and through the help of friends with a meal and babysitting, we got through it completely and I'm back on my feet. We're officially on 4 hour feeds with it taking only an hour to eat and while that doesn't sound a whole lot better, I feel better. Every little hour and minute helps and it also means our little boy is getting stronger. During his wake periods, everyone fights who gets to be next to him and have his little eyes gaze in concentrated wonder! I learned a few things from the experience, first, despite being overwhelmed and feeling like a first time parent all over again, the Lord does make us able to do things we think we can't do. Secondly, He often inspires others around us to help 'carry' us through reminding me once again that this life is about 'family', those we're born into and those we make.
Here's a shot I took of Elias just before we had to go back for the second round of phototherapy. He already knows how to pose for the camera, even in his sleep! Despite all that went on, we did manage to get out and have some fun as a family. We attended a camp Jamboree in Scottsdale where summer camps of all types came to have some free activities for families as well as advertise for their programs. There were bounce houses, games, petting zoo, horses and even a smore roast. Keila's day was complete with the chance to brush a horse and Isaac's mouth was sealed shut with a sticky gooey smore. div class="separator" style="clear: both; text-align: center;"> Elias is as snuggle-able a package as anything can be. Somehow he's taken our entire hearts without lifting a finger. Keila and Isaac are in raptures when he looks at them and I worry more that he'll be smothered with love. Hopefully he'll grow to look on these annoyingly intense expressions of love with pleasure. Despite being only 5 and half weeks, he too has had his own accomplishments. We went to the doctor a week ago and discovered he was only 6 ounces more than his birth weight. Despite the jaundice being gone, his sleepiness was increasing and feeding him was taking an hour and a half to complete. Since I was breastfeeding once side and bottle feeding the other, I had no real idea of how much he was getting. (This is where I'd like to ask the Lord if he could just make my breast see through with little marker lines for the ounces of milk produced .... anyone else feel the same way?!) It turns out that the fatigue was not just due to low muscle tone, but that his sugar levels were dropping which made him more tired, hence he would not feed well and the cycle spiraled downward. I was rather distressed and overwhelmed with how to break the pattern let alone function with the other two children. The doctor suggested that I try pumping entirely at least every other feeding and to get in 3 ounces each time. Unfortunately when we did this, Elias who has a little reflux, seem to aspirate more frequently. I would nurse him and lay awake listening to him gag and choke on whatever came up or I'd 'sleep' on the couch upright to hold him through it. Obviously he couldn't handle more than 2 ounces of anything.
Next we tried to fortify his milk by adding just a small amount of formula to my pumped breastmilk. I also asked for some expert advice from 2 friends who have babies wiht Down Syndrome. We moved to 3 hour feeds and Kent took care of the other kiddos for the entire weekend. I moved from one sleep deprived feed to another and crashed in bed each moment I got, by Sunday night I was getting worried about how long it would take to break this cycle. Thankfully it was that very evening we Elias began feeding quicker and better. I did a dance of joy (in my dreams!) and through the help of friends with a meal and babysitting, we got through it completely and I'm back on my feet. We're officially on 4 hour feeds with it taking only an hour to eat and while that doesn't sound a whole lot better, I feel better. Every little hour and minute helps and it also means our little boy is getting stronger. During his wake periods, everyone fights who gets to be next to him and have his little eyes gaze in concentrated wonder! I learned a few things from the experience, first, despite being overwhelmed and feeling like a first time parent all over again, the Lord does make us able to do things we think we can't do. Secondly, He often inspires others around us to help 'carry' us through reminding me once again that this life is about 'family', those we're born into and those we make.
For Easter we attended the annual Candy hunt at the Peoria Sports Complex. This year Kent was able to go so the two oldest had the chance to do all sorts of crafts and rides. The long wait before the horn .... And the mad dash out onto the field for their sweet treasure! Shirts they could color permanently which have now become their PJs. Train rides and pony rides. The Easter Bunny managed to make his annual visit, despite being so very busy. The kids got home from church to find a bucket with a hand written note telling them their were 8 eggs in the backyard for them to find. Isaac had been questioning if the Easter Bunny was real and since I was home at the time the long-eared fellow stopped by he put me through the third degree in questioning. Isaac was so disappointed he missed seeing him that he ran out to check if he was at the neighbors. Apparently he had just stopped by the neighbors across the street which was obvious from the eggs and candy being hastily consumed. This seems to have quelled his skepticism for now, but when his friends said they didn't see "The Bunny" he exclaimed, "That is one tricky rabbit!" Keila didn't waste anytime, but picked through what the eggs offered and went for the chocolate. (Such the girl!) Isaac had trouble just deciding on the egg!
Labels:
Down Syndrome,
Elias,
holidays,
Isaac,
Keila,
motherhood
Monday, April 16, 2012
Trisomy 21
I've spent the last few days wondering how to begin this post. It's a bit like using a delicate tea cup to catch a drink of water from a fire hose. There's just too much coming at me. Somehow though, in the late hours of the night as I nurse this new little being I've had the chance to sort through a few thoughts and wanted to record them here for me, for family.

When Elias was born, he had a few 'markers' that created some concern among the nurses. Namely, the excess fatty tissue at the nape of his neck, the gap found between the large toe, simian creases across the hands and a protuberant tongue. His facial features were not so obvious and unlike other babies he didn't have quite the definitive hypotonia (lack of tone) in his body. Nothing was said to us but on that first night together as I burped him, I noticed the tissue on his neck and the remember clearly thinking that it looked like Down syndrome.
We had more pressing concerns though. As with each of our children, the jaundice common to newborns often peaked higher and longer than typical. This is given to their genetics and with 2 other children and little time off for Kent, we were anxious to begin photo light therapy immediately rather than wait and be admitted again later. We were discussing these concerns with the pediatrician when she brought up the 'small suspicion' of Down syndrome. Strangely I was not surprised by this, but it was difficult for Kent who I had not had the chance to communicate my thoughts from the night before. The doctor was rather cavalier as she addressed it simply because his tone was rather good. Even when I brought it up again to another doctor at the same practice, he had very little concern and felt that at worst, he might be a mosaic (where some cells in the body reflect the extra chromosome and others do not) rather than 'fully Down syndrome'. The test results would be back in 7-10 days.
Meanwhile we went ahead with the photo therapy. I requested that a priesthood blessing be given Elias and as Kent did so, his voice filled with emotion. The blessing stated that Elias had a special mission here in life and that it was to help his family return to their Father in Heaven. It called to mind the blessing I had received when all the trouble with the pregnancy started. At that time the Lord said that this child would come at the appropriate time and that he would be a forerunner of many things in our life. I had not given it much thought until then, but I knew from those words that either Elias would not be long with us in this life, or that he would have challenges that would require our family pulling together to work through them.

Nearly 10 days later, we had a draw on his billiruben levels. The initial photo therapy was insufficient, he was at at 20.9 and we were told to go back to the hospital immediately. At the time Kent also asked for the results on the chromosome testing. Literally while we were at the check-in desk, the nurse practitioner called wtih the result - positive for trisomy 21. Watching Kent's face and I knew the results without Kent saying the words.
I remember looking at my beautiful son and feeling so strange. He was still my boy, always and forever, my love for him had not changed and yet it felt like something SHOULD have changed with the pronouncement of Down syndrome. I chalked it up to denial and mulled over my feelings as a few days passed. I figured at some point I would feel an overwhelming sense of grief and loss.

In the late hours I'd surf the web while feeding my little boy. I came across several blogs and read their birth stories with Down syndrome. In particular, one from Kelle Hampton where she describes her intense grieving the night of her child's birth. Somehow I felt as if I ought to have experienced the same thing and yet as I read other blogs from Rick Smith better known as Noah's Dad, I realized that grieving and acceptance is so very individualistic. I felt a sense of wonder at how calm I was.
If being a mother of 2 already has taught me anything, it is that no child is what we expect them to be. They were their own little individuals long before God gave them to me. They each have their own strenghts and weakness's, and Elias will be no different. His weaknesses are only more apparent because of their physical nature. I am well aware of some of those challenges he will face, and I'm sure I will weep for him as he suffers and struggles, just as I will with Isaac and Keila.
My greatest anxiety was for myself, as selfish as that sounds. Could I honestly be a good mother to this child? I lack so much in patience already with the other two and slowing down was not easy for me. Could I do it now, before Elias was at a stage that would be much more demanding? How would I balance myself between my children, my husband and myself? Would I be 'present' enough to hear the promptings of the Spirit and see where each person's needs are and how best to help fulfill them?
Then I read an article by Elder David A Bednar entitled The Atonement and the Journey of Mortality. "It is through the grace of the Lord that individuals ... receive strength and assistance to do good works that they otherwise would not be able to maintain if left to their own means. This grace is an enabling power ..." So there it was, did I really have faith in my Savior that He knew what He wanted when he gave me Elias? More than that, did I have faith He would enable me to do more than I am currently capable of? Would He make up the difference where I was lacking? I have proclaimed this belief for all these years, was I ready to show it?
So for the most part, peace has taken the place of confusion and anxiety. It's a humbling thing to be a parent to any child. There is something about the process that teaches you the value of a soul and brings out the best and the worst in you. Simply having Elias in our home has made Kent and I assess and work on how we deal with Isaac and Keila. There is a greater sense of calm and we are enjoying each other more. I'm sure this will not be constant, but hopefully it will be something we return to again and again as we become better parents.
I'm so grateful for the support and positive words and service from those around us. Everything from meals, to child care just so I can get some sleep or take Elias to an appointment ... these are all things that remind me how blessed I am. A special thanks to all those who patiently listen to all my concerns (no matter how great or small) who allow me the opportunity to be a 'anxious mom' and then gently remind me that everything will be okay. Most of all I'm owe much to the gospel and my Savior. Certainly I would not be where I am without Him and His gift of family, friends and home. "For the Lord Jehovah is my strength and my song; he also is become my salvation" (Isaiah 12: 2)

As for Elias, his middle name, Tien Yeuk, means Heaven's Covenant, a reminder to us of the promises God makes to us as we do our best to fulfill our part. Initially Elias was given this name in the hopes of reminding him of blessings we are given in abundance as we live righteous lives. Now I think that he himself is our family's reminder of these blessing and promises. I'm grateful to have him in our lives and look forward to seeing him grow and what we as a family learn from him!


Many thanks to our amazing photographer, Sarah Allred. http://sarahgracephotographyblog.com/

When Elias was born, he had a few 'markers' that created some concern among the nurses. Namely, the excess fatty tissue at the nape of his neck, the gap found between the large toe, simian creases across the hands and a protuberant tongue. His facial features were not so obvious and unlike other babies he didn't have quite the definitive hypotonia (lack of tone) in his body. Nothing was said to us but on that first night together as I burped him, I noticed the tissue on his neck and the remember clearly thinking that it looked like Down syndrome.
We had more pressing concerns though. As with each of our children, the jaundice common to newborns often peaked higher and longer than typical. This is given to their genetics and with 2 other children and little time off for Kent, we were anxious to begin photo light therapy immediately rather than wait and be admitted again later. We were discussing these concerns with the pediatrician when she brought up the 'small suspicion' of Down syndrome. Strangely I was not surprised by this, but it was difficult for Kent who I had not had the chance to communicate my thoughts from the night before. The doctor was rather cavalier as she addressed it simply because his tone was rather good. Even when I brought it up again to another doctor at the same practice, he had very little concern and felt that at worst, he might be a mosaic (where some cells in the body reflect the extra chromosome and others do not) rather than 'fully Down syndrome'. The test results would be back in 7-10 days.
Meanwhile we went ahead with the photo therapy. I requested that a priesthood blessing be given Elias and as Kent did so, his voice filled with emotion. The blessing stated that Elias had a special mission here in life and that it was to help his family return to their Father in Heaven. It called to mind the blessing I had received when all the trouble with the pregnancy started. At that time the Lord said that this child would come at the appropriate time and that he would be a forerunner of many things in our life. I had not given it much thought until then, but I knew from those words that either Elias would not be long with us in this life, or that he would have challenges that would require our family pulling together to work through them.

Nearly 10 days later, we had a draw on his billiruben levels. The initial photo therapy was insufficient, he was at at 20.9 and we were told to go back to the hospital immediately. At the time Kent also asked for the results on the chromosome testing. Literally while we were at the check-in desk, the nurse practitioner called wtih the result - positive for trisomy 21. Watching Kent's face and I knew the results without Kent saying the words.
I remember looking at my beautiful son and feeling so strange. He was still my boy, always and forever, my love for him had not changed and yet it felt like something SHOULD have changed with the pronouncement of Down syndrome. I chalked it up to denial and mulled over my feelings as a few days passed. I figured at some point I would feel an overwhelming sense of grief and loss.

In the late hours I'd surf the web while feeding my little boy. I came across several blogs and read their birth stories with Down syndrome. In particular, one from Kelle Hampton where she describes her intense grieving the night of her child's birth. Somehow I felt as if I ought to have experienced the same thing and yet as I read other blogs from Rick Smith better known as Noah's Dad, I realized that grieving and acceptance is so very individualistic. I felt a sense of wonder at how calm I was.
If being a mother of 2 already has taught me anything, it is that no child is what we expect them to be. They were their own little individuals long before God gave them to me. They each have their own strenghts and weakness's, and Elias will be no different. His weaknesses are only more apparent because of their physical nature. I am well aware of some of those challenges he will face, and I'm sure I will weep for him as he suffers and struggles, just as I will with Isaac and Keila.
My greatest anxiety was for myself, as selfish as that sounds. Could I honestly be a good mother to this child? I lack so much in patience already with the other two and slowing down was not easy for me. Could I do it now, before Elias was at a stage that would be much more demanding? How would I balance myself between my children, my husband and myself? Would I be 'present' enough to hear the promptings of the Spirit and see where each person's needs are and how best to help fulfill them?
Then I read an article by Elder David A Bednar entitled The Atonement and the Journey of Mortality. "It is through the grace of the Lord that individuals ... receive strength and assistance to do good works that they otherwise would not be able to maintain if left to their own means. This grace is an enabling power ..." So there it was, did I really have faith in my Savior that He knew what He wanted when he gave me Elias? More than that, did I have faith He would enable me to do more than I am currently capable of? Would He make up the difference where I was lacking? I have proclaimed this belief for all these years, was I ready to show it?
So for the most part, peace has taken the place of confusion and anxiety. It's a humbling thing to be a parent to any child. There is something about the process that teaches you the value of a soul and brings out the best and the worst in you. Simply having Elias in our home has made Kent and I assess and work on how we deal with Isaac and Keila. There is a greater sense of calm and we are enjoying each other more. I'm sure this will not be constant, but hopefully it will be something we return to again and again as we become better parents.
I'm so grateful for the support and positive words and service from those around us. Everything from meals, to child care just so I can get some sleep or take Elias to an appointment ... these are all things that remind me how blessed I am. A special thanks to all those who patiently listen to all my concerns (no matter how great or small) who allow me the opportunity to be a 'anxious mom' and then gently remind me that everything will be okay. Most of all I'm owe much to the gospel and my Savior. Certainly I would not be where I am without Him and His gift of family, friends and home. "For the Lord Jehovah is my strength and my song; he also is become my salvation" (Isaiah 12: 2)

As for Elias, his middle name, Tien Yeuk, means Heaven's Covenant, a reminder to us of the promises God makes to us as we do our best to fulfill our part. Initially Elias was given this name in the hopes of reminding him of blessings we are given in abundance as we live righteous lives. Now I think that he himself is our family's reminder of these blessing and promises. I'm grateful to have him in our lives and look forward to seeing him grow and what we as a family learn from him!


Many thanks to our amazing photographer, Sarah Allred. http://sarahgracephotographyblog.com/
Thursday, April 5, 2012
Elias Tien Yeuk Montierth
Sunday morning of the 25 of March I began having contractions in 10 min intervals. I really didn't pay much attention to it, after all, I'd been having them all week long. I'd love to say that I was still as positive as before, but I was rather worn from the pain and found myself often near to tears in that 36th week worried about how much of me (mentally and emotionally) would be left when the time came for this little one to come. The Lord knows me well and within minutes I felt a little gush - my water had broke. Apparently you're suppose to go to the hospital immediately when this happens, but perhaps due to it being a new experience for me and also a little pride, I was afraid to rush in only to be told I had peed on myself. ;0) So I dilly dallied about, waking up Kent and the kids until I could be certain it wasn't an overactive bladder!
I called a friend who came over got the kids dressed and ready for church. It was nice knowing that it would be a 'normal' day for them. (Can you tell I have control issues?!) We got to the hospital around 10 (3 hrs after my water broke) but my body was being contrary and contractions had slowed down. The doctor on call gave me the option of waiting to see if my body would go of it's own accord or inducing. I hadn't had much in the way of sleep so we opted to wait for and hour or two and I dozed quietly on the bed. At 12:30pm we got the 'party started' with an epidural and pitocin. Interestingly enough, our nurse and anesthesiologist were the same ones we had with Keila. Unfortunately something funky happened this time and my entire right leg was so numb you could have stuck a knife in it while my left side had me crying in pain. The monitors were off somehow and not registering anything so Kent was rather puzzled by my gasps of pain but when the tears started rolling he was pretty testy with the lack of response from the nurse's station to his call. I was checked and fully dilated. I was given the option of a higher dose on the epidural or trying to push though I hadn't felt that sensation yet. I was so ready, get this baby outta me! so one test push moved kiddo #3 down and our nurse was calling the doctor to get ready to catch!
At exactly 2:45pm he was born. It was love at first cry! He was small compared to my other ones, only 6 lbs 5 ounces and he was beautiful. Such long piano fingers and a tiny sharp chin, Elias Tien Yeuk Montierth was here.

Face to face at last! Who could not love such a precious bundle from heaven!

I like to call this his tryout for a part in a Dr. Seuss movie!

Isaac and Keila adored him the moment they met him. Keila has never been one for dolls, let alone being gentle with other babies, but she and Isaac were so tender and loving, it made me gush with warmth inside.
Welcome to our beautiful family and our crazy little world Elias. We love you!
I called a friend who came over got the kids dressed and ready for church. It was nice knowing that it would be a 'normal' day for them. (Can you tell I have control issues?!) We got to the hospital around 10 (3 hrs after my water broke) but my body was being contrary and contractions had slowed down. The doctor on call gave me the option of waiting to see if my body would go of it's own accord or inducing. I hadn't had much in the way of sleep so we opted to wait for and hour or two and I dozed quietly on the bed. At 12:30pm we got the 'party started' with an epidural and pitocin. Interestingly enough, our nurse and anesthesiologist were the same ones we had with Keila. Unfortunately something funky happened this time and my entire right leg was so numb you could have stuck a knife in it while my left side had me crying in pain. The monitors were off somehow and not registering anything so Kent was rather puzzled by my gasps of pain but when the tears started rolling he was pretty testy with the lack of response from the nurse's station to his call. I was checked and fully dilated. I was given the option of a higher dose on the epidural or trying to push though I hadn't felt that sensation yet. I was so ready, get this baby outta me! so one test push moved kiddo #3 down and our nurse was calling the doctor to get ready to catch!
At exactly 2:45pm he was born. It was love at first cry! He was small compared to my other ones, only 6 lbs 5 ounces and he was beautiful. Such long piano fingers and a tiny sharp chin, Elias Tien Yeuk Montierth was here.
Face to face at last! Who could not love such a precious bundle from heaven!
I like to call this his tryout for a part in a Dr. Seuss movie!
Isaac and Keila adored him the moment they met him. Keila has never been one for dolls, let alone being gentle with other babies, but she and Isaac were so tender and loving, it made me gush with warmth inside.
Welcome to our beautiful family and our crazy little world Elias. We love you!
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