Sunday, March 17, 2013

World Down Syndrome Day 3/21

We love the activities hosted by Sharing Down Syndrome of AZ but struggle to get out to them since many are in Mesa, at least 45 mins away. March 21 is World Down Syndrome Day (3/21 or in other words, three chromosomes on the twenty first pair of chromosomes) and they held a Glow Walk/Run last night and will have activities on the 21st but we were disappointed we wouldn't be able to make it to any of them. I wanted to do something to celebrate Elias' birthday as well as all it's taught us.

When we first heard Elias possible diagnosis I called a friend in the ward, Tara Larsen within hours. Her son Porter also has DS and she was able to allay many of my concerns and fears. We've talked about how we'd love our boys to grow up together so it was only fitting I should call her and arrange our own little DS walk/run in our neighborhood.

I had spoken to her about it weeks before but was to busy to advertise it except the Wednesday before the event. Honestly I would have been happy if it were just our two families, but was thrilled when so many friends responded including so old college friends who were once in the ward.

Bubby was a little tired!

Our lovely helpers that took pictures and guarded donuts from sticky little hands until the run was done.

Everyone walked or ran the mile distance in around Mountain Shadows Elementary. While Our family walked with Jordan and Natsume Inoyuye we got caught up on all that's passed in the last 5 years. Afterwards we had donuts and juice to celebrate.

There were suggestions that we ought to do it again next year and include a few other families touched by DS. It was truly touching for both Kent and I that so many came out in support. Thank you one and all, we truly feel the love!

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